Saturday, 23 April 2016

Busy Month of April

The month of April is for me generally a busy month.  Easter, my sisters birthday and mine to boot.  

However, in the wider world of the Society it has also been a busy month.

The first great event was the publication of ‘Life after Encephalitis’ by the Society’s own CEO: Dr Ava Easton.

 ‘Life After Encephalitis provides a unique insight into the experiences of those affected by encephalitis, sharing the rich, perceptive, and often powerful, narratives of survivors and family members. It shows how listening to patient and family narratives can help us to understand how they make sense of what has happened to them, and also help professionals better understand and engage with them in practice. The book will also be useful for considering narratives associated with brain injuries from other causes, for example traumatic brain injury. Life After Encephalitis will appeal to a wide range of people: professionals working in neurology and rehabilitation, and also to and survivors of encephalitis, their families, and carers.’  

I think some are still available via the Society, click here.

The second bit of news relates to one of the Society’s Ambassadors, Aliki Chrysochou who has released her first album ‘Reflections’, and it is available via iTunes, Amazon and Goggle play.

The third bit of Society news has been the lunch of the new Team Encephalitis Volunteers….yeah!!!  I had a lovely phone call with Philly Chapman about the scheme and the training modules that I would have to undertake.  Just lasy week, sure enough I had an email through linking the courses and Mod1: Understanding Volunteers.  Covers basic information on the role (inc all the usual boring stuff: H&S), and a few documents for me to download and read through.  Just about finished it, and hopefully I will be allowed access to the 2nd Module soon.  This is all part of the new scheme that the Society is running, with the aim of increasing the work the Society does in arising awareness and support.  I am mad keen on this having over the last few years raised money and now wish to move onto a little more of a proactive role.

Finally, a mention to Jon Ainley a member of staff at the Society's HQ who is riding a bike from HQ in Malton, Yorks to Abergavenny, Wales - some 270miles.  Info and sponsorship details found here: Jons Big Bike Ride

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